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Disability Resources

Amputees
Amputee Treatment Center
Address:
8388 Lewiston Rd.
Batavia, N.Y. 14020
Phone: (716) 343-4154
Fax: (716) 343-8101
E-mail: amputee@iinc.com
Internet: http://amputee-center.com/

Attention Deficit/Hyperactivity Disorder
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
Address: 8181 Professional Place
Suite 201
Landover, MD 20785
Phone: (800) 233-4050 301-306-7070
Fax: 301-306-7090
E-mail: webmaster@chadd.org
Internet: http://www.chadd.org

National Attention Deficit Disorder Association (ADDA)
Address: National ADDA
1788 Second Street, Suite 200
Highland Park, IL 60035
Phone: 847-432-ADDA
Fax: 847-432-5874
E-mail: mail@add.org
Internet: http://www.add.org/

Autism, Asperger's Syndrome, Fragile X, Hyperlexia
Autism Society of America
Address: 7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814-3015
Phone: (800)-3AUTISM, extension 150
(301)-657-0881
Fax: (301)-657-0869
E-mail: asa@smart.net
Internet: http://www.autism-society.org

National Autistic Society
Address: 393 City Road, London,
EC1V 1NG, United Kingdom
Phone: +44 (0)20 7833 2299
Fax: +44 (0)20 7833 9666
E-mail: nas@nas.org.uk
Internet: http://www.oneworld.org/autism_uk/

Fragile X Research Foundation
Address: 45 Pleasant St., Newburyport,
MA 01950
Phone: (978) 462-1866
Fax: (978) 463-9985
Email: kclapp@fraxa.org
Internet: http://www.fraxa.org/

American Hyperlexia Association
Address: 195 W. Spangler Suite B
Elmhurst, Illinois 60126
Phone: (630) 415-2212
Fax: (630) 530-5909
E-mail: info@hyperlexia.org
Internet: http://www.hyperlexia.org/

Autism Research Institute
Address: 4182 Adams Avenue
San Diego, CA 92116
U.S.A.
Fax: (619) 563-6840
E-mail: samr7@netcom.com
Internet: http://www.autism.org/

Blind & Visual Impairment
American Council of the Blind
Address: 1155 15th Street, NW, Suite 1004
Washington, DC 20005
Phone: (202) 467-5081 (800) 424-8666
Fax: (202) 467-5085
E-mail: info@acb.org
Internet: http://www.acb.org

American Foundation for the Blind
Address: AFB Headquarters
11 Penn Plaza, Suite 300
New York, NY 10001
Phone: (212) 502-7600
E-mail: afbinfo@afb.net
Internet: http://www.afb.org/afb/

Canadian National Institute for the Blind (CNIB)
Address: 1929 Bayview Avenue
Toronto, Ontario
Canada M4G 3E8
Phone: 416-480-7520
1-800-268-8818
Fax 416-480-7700
E-mail: webmaster@cnib.ca
Internet: http://www.cnib.ca/

National Federation of the Blind (NFB)
Address: 1800 Johnson Street
Baltimore, MD 21230
Phone: 410-659-9314
E-mail: epc@roudley.com
Internet: http://www.nfb.org/default.htm

Brain Injury (TBI/ABI)
Traumatic Brain Injury Project
Address: University of Kansas Medical Center
Department of Special Education
4001 H.C. Miller Building
3901 Rainbow Boulevard
Kansas City, KS 66160-7335
Phone: (913) 588-5943
Fax: (913) 588-5942
Email: lwilkers@kumc.edu
jtyler@kumc.edu
Internet: http://www.sped.ukans.edu/spedprojects/tbi/TBIHomePage.html

Centre for Neuro Skills (CNS)
Address: 2658 Mt. Vernon Ave.
Bakersfield, CA 93306
Phone: 800-922-4994
661-872-3408
Fax: 661-872-5150
E-mail: bakersfield@neuroskills.com
Internet: http://www.neuroskills.com

Cerebral Palsy
United Cerebral Palsy Associations (UCPA)
Address: UCPA National
1660 L Street, NW, Suite 700,
Washington, DC 20036
Phone: 800-872-5827/202-776-0406
TTY: 202-973-7197
Fax: 202-776-0414
E-mail: tking@ucpa.org
Internet: http://www.ucpa.org

American Cerebral Palsy Information Center
E-mail: ACPIC@cerebralpalsy.org
stern4hope@aol.com
Internet: http://www.cerebralpalsy.org

American Academy for Cerebral Palsy and Developmental Medicine (AACPDM)
Address: 6300 N. River Rd, Suite 727
Rosemont, IL 60018
Phone: 708-698-1635
Internet: http://149.142.183.10/new/site_content/members/index.htm

Deaf & Hearing Impaired
American Speech-Language-Hearing Association (ASHA)
Address: 10801 Rockville Pike
Rockville, Maryland 20852
Phone: 888-321-ASHA, 800-498-2071
TTY 301-571-0457
Fax: 1-877-541-5035
E-mail: actioncenter@asha.org
Internet: http://www.asha.org/

National Association of the Deaf
Address: NAD
814 Thayer Avenue
Silver Spring, MD 20910-4500
Phone: (301) 587-1789 TTY
(301) 587-1788 Voice
Fax: (301) 587-1791
Email: NADinfo@nad.org
Internet: http://www.nad.org/

National Institute on Deafness and Other Communication Disorders (NIDCD)
Address: 31 Center Drive, MSC 2320
Bethesda, MD USA 20892-2320
Phone: Voice (301) 496-7243; TTY (301) 402-0252
Fax: (301) 402-0018
E-mail: webmaster@nidcd.nih.gov
Internet: http://www.nih.gov/nidcd/

Deaf & Hearing Impaired

American Speech-Language-Hearing Association (ASHA)
Address: 10801 Rockville Pike
Rockville, Maryland 20852
Phone: 888-321-ASHA, 800-498-2071
           TTY 301-571-0457
Fax: 1-877-541-5035
E-mail: actioncenter@asha.org
Internet: http://www.asha.org/

National Association of the Deaf
Address: NAD
 814 Thayer Avenue
               Silver Spring, MD 20910-4500
Phone: (301) 587-1789 TTY
(301) 587-1788 Voice
Fax:  (301) 587-1791
Email: NADinfo@nad.org
Internet: http://www.nad.org/

National Institute on Deafness and Other Communication Disorders (NIDCD)

Address: 31 Center Drive, MSC 2320
Bethesda, MD USA 20892-2320
Phone: Voice (301) 496-7243;  TTY (301) 402-0252
Fax: (301) 402-0018
E-mail: webmaster@nidcd.nih.gov
Internet: http://www.nih.gov/nidcd/

 

Dwarfism
Asociación Nacional Para Problemos de Crecimeinto (CRECER)
Address: Cuartel de Artillería, 12 - bajo
E-30002 Murcia (España)
Phone: +34 968 34 62 18
Fax: +34 968 34 62 02
E-mail: crecer@crecimiento.org
Internet: http://www.crecimiento.org

Belgian Association of Little People
(Association Belge des Personnes de Petite Taille)
Address: Clos des Merisiers, 608 Bte 2
1480 Tubize, Belgium
Phone: +32 2 355 79 64
E-mail: jose.leblanc@village.uunet.be
Internet: http://www.geocities.com/CapeCanaveral/Launchpad/3459

The Quebec Association of Persons of Short Stature
(Association québécoise des personnes de petite taille)
Address: 2177, rue Masson, suite 205
Montréal, Québec, Canada
H2H 1B1
Phone: (514) 521-9671
Fax: (514) 521-3369
E-mail: aqppt@total.net
Internet: http://www.aqppt.org

Dutch Organization of Little People
Belangenvereniging Van Kleine Mensen (BVKM).
Address: Wevelaan 75
3571 Utrecht
The Netherlands
Phone: 030-27-111 98
Fax: 030-27-111 98
E-mail: tlvv@westbrabant.net
Internet: http://www.bvkm.nl

Down Syndrome
National Association for Down Syndrome (NADS)
Address: P.O. Box 4542
Oak Brook, IL 60522
Phone: (630) 325-9112
E-mail: webmaster@nads.org
Internet: http://www.nads.org

National Down Syndrome Society
Address: NDSS, 666 Broadway,
New York, NY 10012
Phone: (212) 460-9330
800-221-4602
Fax: 212-979-2873
E-mail: jschell@ndss.org
Internet: http://www.ndss.org

Association for Children with Down Syndrome (ACDS)
Address: 4 Fern Place
Plainview, New York
11803, USA
Phone: 516 993 4700
Fax: 516 933 9524 (F)
E-mail: info@acds.org
Internet: http://www.acds.org/index2.html

National Down Syndrome Congress
Address: 7000 Peachtree-Dunwoody Road, N.E.
Lake Ridge 400 Office Park Building
#5 - Suite 100, Atlanta, GA 30328
Phone: 800.232.NDSC
770.604.9500
E-mail: NDSCcenter@aol.com
Internet: http://www.ndsccenter.org/

Fetal Alcohol Syndrome/Effects (FAS/FAE)
National Organization on Fetal Alcohol Syndrome (NOFAS)
Address: 418 'C' Street North East
Washington, DC 20002
Phone: (202) 785-4585
Fax: (202) 466-6456
E-mail: nofas@erols.com
Internet: http://www.nofas.org/

Fetal Alcohol Syndrome Consultation, Education and Training Services
(FASCETS)
Address: FASCETS, Inc.
PO Box 83175
Portland, Oregon 97283
Phone: 503-621-1271
E-mail: dmalbin@oregonvos.net
Internet: http://www.fascets.org/

Hydrocephalus & Spina Bifida
Association for Spina Bifida and Hydrocephalus
Address: 42 Park Road
Peterborough
PE1 2UQ, England
Phone: 01733 555988
Fax: 01733 555985
E-mail: postmaster@asbah.demon.co.uk
Internet: http://www.asbah.demon.co.uk/

Hydrocephalus Association
Address: 870 Market Street, Suite 705
San Francisco, CA 94102
Phone: (415) 732-7040
Fax: (415) 732-7044
E-mail: hydroassoc@aol.com
Internet: http://www.HydroAssoc.org/

The Spina Bifida Association of America
Address: 4590 MacArthur Blvd.,
NW, Suite 250
Washington, DC 20007-4226
Phone: (800) 621-3141, (202) 944-3285
Fax: (202) 944-3295
E-mail: sbaa@sbaa.org
Internet: http://www.sbaa.org/

Spina Bifida & Hydrocephalus Association of South Australia
Address: PO Box 16
North Adelaide
SA 5006 Australia
Phone: (08) 8267 2508
Internet: http://www.span.com.au/spinabif_sa/index.html

Language/Speech Disorders
American Speech-Language-Hearing Association (ASHA)
Address: 10801 Rockville Pike
Rockville, Maryland 20852
Phone: 888-321-ASHA, 800-498-2071
TTY 301-571-0457
Fax: 1-877-541-5035
E-mail: actioncenter@asha.org
Internet: http://www.asha.org/

National Aphasia Association
Address: 156 Fifth Avenue, Suite 707
New York, NY 10010
Phone: 1-800-922-4622
E-mail: naa@aphasia.org
Internet: http://www.aphasia.org/

Learning Disabilities
International Dyslexia Association (IDA)
Address: International Office
8600 LaSalle Road, Chester Building, Suite 382
Baltimore, MD 21286-2044 USA
Phone: Messages (800) ABCD123, Voice (410) 296-0232
Fax: (410) 321-5069
E-mail: http://www.interdys.org/e-mail_o.stm
Internet: http://www.interdys.org/

Learning Disabilities Association of America (LDA)
Address: 4156 Library Road
Pittsburgh, PA 15234-1349
Phone: (412) 341-1515
Fax: (412) 344-0224
E-mail: ldanatl@usaor.net
Internet: http://www.ldanatl.org/

National Center for Learning Disabilities
Address: 381 Park Ave. South, Suite 1401
New York, NY 10016
Phone: 212/ 545-7510 1-888/575-7373
Fax: 212/545-9665
http://www.ncld.org/

Mental Retardation
The Arc National Headquarters
Address: 1010 Wayne Ave., Suite 650
Silver Spring, MD 20910
Phone: (301) 565-3842
1-800-433-5255
Fax (301) 565-5342
E-mail: info@thearc.org
Internet: http://www.thearc.org/
State and Local Chapters: http://www.thearc.org/chapters.htm

The Arc's Publications Desk,
Address: 3300-C Pleasant Valley Lane
Arlington, Texas 76015.
Phone: 1-888-368-8009
Internet: http://www.thearcpub.com/

American Association on Mental Retardation.
Address: 444 North Capitol Street, NW, Suite 846
Washington, D.C. 20001-1512
Phone: 202/387-1968
800/424-3688
Fax: 202/387-2193
E-mail: fttal@uaf.edu
Internet: http://www.aamr.org

Developmental Disabilities Center
Address: 1400 Dixon Avenue,
Lafayette, Colorado, 80026.
Phone: 303.665.7789
Fax: 303.665.2648
E-mail: caroline@ddcboulder.com
Internet: http://ddcboulder.com/

Muscular Dystrophy
Muscular Dystrophy Association of United States of America
Address: Muscular Dystrophy Association - USA
National Headquarters
3300 E. Sunrise Drive
Tucson, AZ 85718
Phone: (800) 572-1717
E-mail: mda@mdausa.org
Internet: http://www.mdausa.org

Muscular Dystrophy Association of Canada
Address: 2345 Yonge Street Suite 900
Toronto, Ontario
M4P 2E5
Phone: (416) 488-0030 1-800-567-CURE
Fax: (416) 488-7523
E-mail: info@mdac.ca
Internet: www.mdac.ca

Muscular Dystrophy Association of Australia
Address: GPO Box 9932
Melbourne 3001, Australia
Phone: 61 3 9370 0477, 1 800 656 MDA
Fax: 61 3 9370 0393
E-mail: bms@mda.org.au
Internet: http://www.mda.org.au/

Muscular Dystrophy Family Foundation
Address: 615 North Alabama Street, Suite 330
Indianapolis, Indiana 46204
Phone: (317) 632-8255, 1-800-544-1213
E-mail: mdff@prodigy.net
Internet: http://www.mdff.org/

Paralysis & Spinal Cord Injury
American Paralysis Association
Address: 500 Morris Avenue,
Springfield, NJ 07081
Phone: (800)225-0292
E-mail: webmaster@apacure.org
Internet: http://www.apacure.com/

Foundation for Spinal Cord Injury Prevention (FSCIP)
Address: FSCIPCC
1310 Ford Building
Detroit, Michigan 48226-3901
Phone: 1-800-342-0330
E-mail: info@fscip.org
Internet: http://www.fscip.org

National Spinal Cord Injury Association
Address: NSCIA SCI
Network of Metropolitan Washington
Plaza West 9
51 Monroe Street
Rockville, MD 20850
Phone: 301-424-8335
Fax: (301) 424-8858
E-mail: steventowle@compuserve.com
Internet: http://www.erols.com/nscia/

Rett Syndrome
International Rett Syndrome Association (IRSA)
Address: 9121 Piscataway Road
Clinton, MD 20735
Phone: 1-800-818-RETT
(301) 856-3334
Fax: (301) 856-3336
E-mail: irsa@rettsyndrome.org
Internet: http://www.rettsyndrome.org/

Rett Syndrome Association UK
Address: 13 Friern Barnet Road,
London N11 3EU
Phone: 020 8361 5161
Fax: 020 8368 6123
E-mail: info@rettsyndrome.org.uk
Internet: http://www.rettsyndrome.org.uk/

Seizure Disorders
Epilepsy Foundation of America
Address: 4351 Garden City Drive,
Landover, MD 20785
Phone: (301) 459-3700, (800) EFA-1000
Fax: (301) 577-4941
E-mail: info@efa.org
Internet: http://www.efa.org

Tourette Syndrome
National Tourette Syndrome Association
Address: 42-40 Bell Boulevard
Bayside, New York 11361-2820
Phone: 718-224-2999
Fax: 718-279-9596
E-mail: tourette@ix.netcom.com
Internet: http://tsa.mgh.harvard.edu/

Tourette Syndrome Association, Inc.
Address: 42-40 Bell Boulevard
Bayside, New York 11361-2820
Phone: 718-224-2999
Fax: 718-279-9596
E-mail: tourette@ix.netcom.com
Internet: www.tsa.mgh.harvard.edu